Kees Bosman


I am the oldest member off the Board.
I was born in 1942 in the Netherlands.
In the year 2000, I stopped working, then it was possible for me to take my pension.

I am married with Tineke and we have three children.
The oldest one is a daughter and two sons.

In 1987,  my oldest son had the Fabry diagnose and some months later also my wife. Both have had ERT by home-infusion since 2002 and 2004.

I am President of the Dutch Fabry patient group called “Fabry Support & Information Group Netherlands (FSIGN) since 2002.

I hope, with this work, to help as much as possible all the Fabry patients world wide.   


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