I am the oldest member off the Board. I was born in 1942 in the Netherlands.In the year 2000, I stopped working, then it was possible for me to take my pension.I am married with Tineke and we have three children. The oldest one is a daughter and two sons.In 1987, my oldest son had the Fabry diagnose and some months later also my wife. Both have had ERT by home-infusion since 2002 and 2004.I am President off the Dutch Fabry patient group called “Fabry Support & Information Group Netherlands (FSIGN) since 2002.
I hope, with this work, to help as much as possible all the Fabry patients world wide.