Rune Sedal

Chairman & Webmaster

I'm born in 1961 at the westcoast of Norway. Working 100 % in DnB NOR IT. Married with Laila and we have 3 boys, 2 with Fabry and my wife. We had the diagnosis in 1998  and have been following the process and improvement of Enzyme Replacement Therapy (ERT) closely. 

Looking forward to any treatment in future, that can make life easier to live, for those affected.
In the meantime, the FIN board wants to give updated information to everyone interested in Fabry disease.

Do not hesitate to take contact by .


Subject User Views Replies Rating Date
Sponsored by:
untitled untitled untitled