Together, we move forward
FIN's mission is to be a global, independent network of Fabry patient associations whose purpose is to collaborate, communicate and promote best practice to support those affected by Fabry disease.
Fabry affects us - but not our ability to smile!
FIN puts the needs of those, affected by Fabry disease, at the centre of its activities.
The most valuable things, are also the most rare.
While Fabry disease may be rare it is not rare for those that inherit the condition. Fabry is pan-ethnic and affects all peoples throughout the world.
Communication - the centre of knowledge!
Two way communication is something FIN strives to achieve. As we live in an age of technology, communication has never been easier.
What is Fabry?
Fabry Disease - An Ophan disease
Fabry Disease is one of several dozen Lysosomal Storage Disorders that interfere with the body’s ability to break down specific fatty substances. It is a very rare disease and because the rate of occurrence is less than 1 in 50,000 is considered one of the many “orphan” diseases. If you wish to order an assignment on that topic and try to find someone you may ask "Could you do my homework for me cheap?", fill in the form at https://elitewritings.com/do-my-homework-for-me.html.
Fabry affected are missing or lack sufficient alpha-galactosidase A (alpha-gal A) enzyme which results in sugars and fatty acids (Gb3) accumulating in the cells throughout the body.
Useful Links:
Unlocking Innovation in Classroom Monitoring: Exploring Advanced Features
News & Updates
Come meet FIN!
Come meet the FIN Board. Read more......
Get involved!!
Get involved with The Fabry International Network!!View our upcomming events!
Stay tuned for more details!
