About FIN

The network was established in 1997

 
The Fabry International Network (FIN) was incorporated in the Netherlands utilizing the Dutch laws for non-profit organizations to raise awareness and educate the public about Fabry disease, a very rare life threatening genetic, lysosomal storage disorder.

FIN is connected to over 27 Member country including Canada and the USA, Australia. Membership is free and open to any national patient organization in which Fabry patients are represented.

Fabry International Network is lucky to have 2 contacts to help us do our job in regions where we can have difficulties reaching.
Mr. Martynas Davidonis from Lithuania helping us reach the Eastern Europe and
Mr Wanderlei Cento Fanta, The founder and president of Abraff in Brazil, helping us with South America.

The FIN board meets regularly 3 times a year via joint telephone conference,  3 times Industry Partners, Amicus, Genzyme and Shire together with our FIN MAB'. We also have a 4th  "face to face" meeting with our FIN Partners during the course of the year..

Please don't hesitate to give any feedback or ask questions to the FIN board of directors.

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