Fabry International Network

Fabry affects us - but not our ability to smile!

 

The Fabry International Network's Treatment Survey!



The Fabry International Network (FIN) and the Medical Advisory Board (MAB) of FIN collaborated to develop a FIN Fabry Treatments Survey about the current global Enzyme Replacement Therapy (ERT) situation. This survey is intended to utilize the patient perspective to examine the global impact on Fabry patients resulting from these changes in ERT availability.
To read the outcomes and conclusions reached, please read the FIN Fabry Treatments Survey Report.

We acknowledge that the shortage is on-going!

Click here to read it in PDF